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The meanings of screams in older people living with dementia in a nursing home

Published online by Cambridge University Press:  02 February 2010

Anne Bourbonnais*
Affiliation:
Faculty of Nursing, Université de Montréal, Québec, Canada
Francine Ducharme
Affiliation:
Faculty of Nursing, Université de Montréal, Québec, Canada Desjardins Research Chair in Nursing Care for Seniors and their Families, Centre de recherche, Institut universitaire de gériatrie de Montréal, Québec, Canada
*
Correspondence should be addressed to: Dr. Anne Bourbonnais, Faculty of Nursing, Université de Montréal, PO Box 6128, Station Centre-Ville, Montréal, Québec, Canada, H3C 3J7. Phone: +1 514 343-6111, ext. 2734; Fax: +1 514 343–2306. Email: Anne.Bourbonnais@UMontreal.ca.

Abstract

Background: Screaming is common among older persons living with dementia in nursing homes. Research on this population has not provided a useful basis for understanding such behavior that could help determine appropriate interventions. The purpose of this study was to explore the meanings of screams in older people living with dementia and their influencing factors.

Methods: Critical ethnography was selected as the research design. Seven triads, each composed of an older person living with dementia who screamed, a primary family caregiver, and one or two formal caregivers, were recruited in a nursing home. Various data collection methods and Spradley's (1979) ethnographic analysis were used.

Results: Screaming is related to vulnerability, suffering, and loss of meaning experienced by older persons. This singular behavior also expresses various final outcomes that can be differentiated through modulation criteria. The meanings of screams are influenced by stability and flexibility in the nursing care organization and reciprocal effects between older persons who scream and others in the nursing home environment. Each person's screams constitute a unique language that can be learned. Other influencing factors include respect for the older person's wishes, needs, and personality, shifts in power relations within the triad, and feelings of powerlessness and guilt in family and formal caregivers.

Conclusions: This study advances knowledge of the meanings of screams in older persons living with dementia. It has implications for and offers insight on culturally congruent care for older persons living with dementia and the people around them.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2010

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References

Adams, T. and Gardiner, P. (2005). Communication and interaction within dementia care triads: developing a theory for relationship-centred care. Dementia, 4, 185205.CrossRefGoogle Scholar
Algase, D. L. et al. (1996). Need-driven dementia-compromised behavior: an alternative view of disruptive behavior. American Journal of Alzheimer's Disease, 11, 10, 1219.Google Scholar
Black, B. S. and Rabins, P. V. (2007). Qualitative research in psychogeriatrics. International Psychogeriatrics, 19, 167173.Google Scholar
Bourbonnais, A. and Ducharme, F. (2008). Screaming in elderly persons with dementia: a critical review of the literature. Dementia, 7, 205225.CrossRefGoogle Scholar
Bowers, B. J. (1988). Family perceptions of care in a nursing home. The Gerontologist, 28, 361368.CrossRefGoogle ScholarPubMed
Boyle, J. S. (1994). Styles of ethnography. In Morse, J. M. (ed.), Critical Issues in Qualitative Research Methods (pp. 159169). Thousand Oaks, CA: Sage Publications.Google Scholar
Caron, W., Hepburn, K., Luptak, M., Grant, L., Ostwald, S. and Keenan, J. (1999). Expanding the discourse of care: family constructed biographies of nursing home residents. Families, Systems and Health, 17, 323335.Google Scholar
Cohen-Mansfield, J. and Werner, P. (1997). Management of verbally disruptive behaviors in the nursing home. Journals of Gerontology: Medical Sciences, 52A, M369M377.Google Scholar
Cohen-Mansfield, J., Werner, P. and Marx, M. S. (1990). Screaming in nursing home residents. Journal of the American Geriatrics Society, 38, 785792.Google Scholar
Cohen-Mansfield, J., Marx, M. S. and Werner, P. (1992). Agitation in elderly persons: an integrative report of findings in a nursing home. International Psychogeriatrics, 4 221240.CrossRefGoogle ScholarPubMed
Doyle, C., Zapparoni, T., O'Connor, D. and Runci, S. (1997). Efficacy of psychosocial treatments for noisemaking in severe dementia. International Psychogeriatrics, 9, 405422.CrossRefGoogle ScholarPubMed
Dwyer, M. and Byrne, G. J. (2000). Disruptive vocalization and depression in older nursing home residents. International Psychogeriatrics, 12, 463471.CrossRefGoogle ScholarPubMed
Foucault, M. (1976). Histoire de la sexualité: la volonté de savoir. Paris: Éditions Gallimard.Google Scholar
Häggström, T. M., Jansson, L. and Norberg, A. (1998). Skilled carers’ ways of understanding people with Alzheimer's disease. Scholarly Inquiry for Nursing Practice: An International Journal, 12, 239266.Google Scholar
Hallberg, I. R., Norberg, Å. and Ericksson, S. (1990). A comparison between the care of vocally disruptive patients and that of other residents at psychogeriatric wards. Journal of Advanced Nursing, 15, 410416.Google Scholar
Henderson, J. N. and Vesperi, M. D. (1995). The Culture of Long-term Care: Nursing Home Ethnography. Westport, CO: Bergin & Garvey.Google Scholar
Leininger, M. (1997). Overview of the theory of culture care with the ethnonursing research method. Journal of Transcultural Nursing, 8, 3252.Google Scholar
Matthews, F. E. and Dening, T. (2002). Prevalence of dementia in institutional care. The Lancet, 360, 225226.Google Scholar
Miesen, B. M. L. (1992). Attachment theory and dementia. In Jones, G. M. M. and Miesen, B. M. L. (eds.), Care-giving in Dementia: Research and Application (pp. 3856). New York: Routledge.Google Scholar
Nolan, M., Davies, S. and Grant, G. (2001). Quality of life, quality of care. In Nolan, M., Davies, S. and Grant, G. (eds.), Working with Older People and Their Families (pp. 418). Buckingham, U.K.: Open University Press.Google Scholar
Ryan, D. P., Tainsh, S. M., Kolodny, V., Lendrum, B. L. and Fisher, R. H. (1988). Noisemaking amongst the elderly in long term care. The Gerontologist, 28, 369371.CrossRefGoogle ScholarPubMed
Schultz, D. S. and Carnevale, F. A. (1996). Engagement and suffering in responsible caregiving: on overcoming maleficience in health care. Theoretical Medicine, 17, 189207.CrossRefGoogle ScholarPubMed
Sloane, P. D. et al. (1997). Management of the patient with disruptive vocalization. The Gerontologist, 37, 675682.Google ScholarPubMed
Spradley, J. P. (1979). The Ethnographic Interview. New York: Holt, Rinehart and Winston.Google Scholar
Thomas, J. (1993). Doing Critical Ethnography. Thousand Oaks, CA: Sage Publications.CrossRefGoogle Scholar
von Gunten, A., Alnawaqil, A.-M., Abderhalden, C., Needham, I. and Schupbach, B. (2008). Vocally disruptive behavior in the elderly: a systematic review. International Psychogeriatrics, 20, 653672.CrossRefGoogle ScholarPubMed
Whittemore, R., Chase, S. K. and Mandle, C. L. (2001). Validity in qualitative research. Qualitative Health Research, 11, 522537.Google Scholar
Williams, C. L. and Tappen, R. M. (1999). Can we create a therapeutic relationship with nursing home residents in the later stages of Alzheimer's disease? Journal of Psychosocial Nursing and Mental Health Services, 37, 2835.CrossRefGoogle ScholarPubMed
Zimmer, J., Watson, N. and Treat, A. (1984). Behavioural problems among patients in skilled nursing facilities. American Journal of Public Health, 74, 11181121.CrossRefGoogle ScholarPubMed