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“Keeping Her Whole”

Bereaved Families’ Accounts of Declining a Request for Organ Donation

Published online by Cambridge University Press:  04 December 2012

Abstract

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Type
Special Section: Consent and Organ Donation
Copyright
Copyright © Cambridge University Press 2012

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References

Notes

1. NHSBT; available at http://www.uktransplant.org.uk/ukt/default.jsp (last accessed 11 Jan 2011).

2. The Human Tissue Act, which got royal assent in November 2004 and was implemented in April 2006 (for transplantation September 2006), states in part 1, section 2, that in the case of a child “appropriate consent means the consent of a person who has parental responsibility for him (the child).” Section 3 states that in the case of an adult “appropriate consent” rests with “a nominated person” or “person who stood in a qualifying relationship to him immediately before he died.” There are a number of criteria listed defining qualifying relationships.

3. Human Tissue Act, London: Her Majesty’s Stationery Office; 2004.

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21. See note 16, Halliday 1994.

22. See note 16, Halliday 1994.

23. For more accessible reading, we decided to simplify the transcription to the absolute minimum, leaving only the basic intonation signatures (full stops) as well as noting significant pauses (dots in round brackets) and backchannel responses. Omitted text is noted in square brackets. Italicized text indicates the fragments to which we want to draw the readers’ attention.

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