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Older people's experiences of cash-for-care schemes: evidence from the English Individual Budget pilot projects

Published online by Cambridge University Press:  23 April 2012

NICOLA MORAN*
Affiliation:
Social Policy Research Unit, University of York, UK.
CAROLINE GLENDINNING
Affiliation:
Social Policy Research Unit, University of York, UK.
MARK WILBERFORCE
Affiliation:
Personal Social Services Research Unit, University of Manchester, UK.
MARTIN STEVENS
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
ANN NETTEN
Affiliation:
Personal Social Services Research Unit, University of Kent, Canterbury, UK.
KAREN JONES
Affiliation:
Personal Social Services Research Unit, University of Kent, Canterbury, UK.
JILL MANTHORPE
Affiliation:
Social Care Workforce Research Unit, King's College London, UK.
MARTIN KNAPP
Affiliation:
Personal Social Services Research Unit, London School of Economics, UK.
JOSE-LUIS FERNÁNDEZ
Affiliation:
Personal Social Services Research Unit, London School of Economics, UK.
DAVID CHALLIS
Affiliation:
Personal Social Services Research Unit, University of Manchester, UK.
SALLY JACOBS
Affiliation:
Personal Social Services Research Unit, University of Manchester, UK.
*
Address for correspondence: Nicola Moran, Social Policy Research Unit, University of York, Heslington, York, YO10 5DD, UK. E-mail: nicola.moran@york.ac.uk

Abstract

Cash-for-care schemes offering cash payments in place of conventional social services are becoming commonplace in developed welfare states; however, there is little evidence about the impact of such schemes on older people. This paper reports on the impact and outcomes for older people of the recent English Individual Budget (IB) pilot projects (2005–07). It presents quantitative data on outcome measures from structured interviews with 263 older people who took part in a randomised controlled trial and findings from semi-structured interviews with 40 older people in receipt of IBs and with IB project leads in each of the 13 pilot sites. Older people spent their IBs predominantly on personal care, with little resources left for social or leisure activities; and had higher levels of psychological ill-health, lower levels of wellbeing, and worse self-perceived health than older people in receipt of conventional services. The qualitative interviews provide insights into these results. Potential advantages of IBs included increased choice and control, continuity of care worker, and the ability to reward some family carers. However, older people reported anxieties about the responsibility of organising their own support and managing their budget. For older people to benefit fully from cash-for-care schemes they need sufficient resources to purchase more than basic personal care; and access to help and advice in planning and managing their budget.

Type
Articles
Copyright
Copyright © Cambridge University Press 2012 

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References

Arksey, H. and Kemp, P. A. 2008. Dimensions of Choice: A Narrative Review of Cash-for-care Schemes. Working Paper No. DHP 2250, Social Policy Research Unit, University of York, York, UK.Google Scholar
Barnes, C. (ed.) 1993. Making Our Own Choices: Independent Living, Personal Assistance and Disabled People. British Council of Organisations of Disabled People, Clay Cross, UK.Google Scholar
Barnes, C. 1997. Older People's Perceptions of Direct Payments and Self Operated Support Systems. British Council of Organisations of Disabled People's Research Unit, University of Leeds, Leeds, UK.Google Scholar
Baxter, K., Glendinning, C. and Clarke, S. 2008. Making informed choices in social care: the importance of accessible information. Health and Social Care in the Community, 16, 2, 197207.Google Scholar
Bowling, A. 1995. Measuring Disease. Open University Press, Buckingham, UK.Google Scholar
Breda, J., Schoenmaekers, D., Van Landerghem, C., Claessens, D. and Geerts, J. 2006. When informal care becomes a paid job: the case of Personal Assistance Budgets in Flanders. In Glendinning, C. and Kemp, P. A. (eds), Cash and Care: Policy Challenges in the Welfare State. Policy Press, Bristol, UK, 155–70.Google Scholar
Campbell, J. and Oliver, M. 1996. Disability Politics: Understanding Our Past, Changing Our Future. Routledge, London.Google Scholar
Clark, H., Gough, H. and Macfarlane, A. 2004. ‘It Pays Dividends’: Direct Payments and Older People. The Policy Press, Bristol, UK.Google Scholar
Clark, H. and Spafford, J. 2001 Piloting Choice and Control for Older People: An Evaluation. The Policy Press and the Joseph Rowntree Foundation, Bristol, UK.Google Scholar
Clements, L. 2008. Individual Budgets and irrational exuberance. Community Care Law Reports, 11, 413–30.Google Scholar
Commission for Social Care Inspection 2004. Direct Payments: What Are the Barriers? Commission for Social Care Inspection, London.Google Scholar
Commission for Social Care Inspection 2005. Social Services Performance Framework Indicators, 2004–5. Commission for Social Care Inspection, London.Google Scholar
Da Roit, B. and Le Bihan, B. 2010. Similar and yet so different: cash-for-care in six European countries’ long-term care policies. The Milbank Quarterly, 88, 3, 286309.CrossRefGoogle ScholarPubMed
Da Roit, B., Le Bihan, B. and Osterle, A. 2007. Long-term care policies in Italy, Austria and France: variations in cash-for-care schemes. Social Policy and Administration, 41, 6, 653–71.Google Scholar
Department of Health 2005. Independence, Well-being and Choice: Our Vision for the Future of Adult Social Care. Department of Health, London.Google Scholar
Department of Health 2010. Recognised, Valued and Supported: Next Steps for the Carers Strategy. Department of Health, London.Google Scholar
Doty, P., Mahoney, K. J. and Simon-Rusinowitz, L. 2007. Designing the cash and counseling demonstration and evaluation. Health Services Research, 42, 1, 378–96.Google Scholar
Dowling, S., Manthorpe, J. and Cowley, S. 2006. Person-centred Planning in Social Care: A Scoping Review. Social Care Workforce Research Unit, Kings College, London.Google Scholar
Ellis, K. 2007. Direct Payments and social work practice: the significance of ‘street-level bureaucracy’ in determining eligibility. British Journal of Social Work, 37, 3, 405–22.Google Scholar
European Commission 2008. Long-term Care in the European Union. European Commission DG Employment, Social Affairs and Equal Opportunities, Brussels.Google Scholar
Fernandez, J.-L., Kendall, J., Davey, V. and Knapp, M. 2007. Direct Payments in England: factors linked to variations in local provision. Journal of Social Policy, 36, 1, 97121.Google Scholar
Ferraro, K. 1980. Self-ratings of health among the old and the old-old. Journal of Health and Social Behaviour, 21, 4, 377–83.CrossRefGoogle ScholarPubMed
Glasby, J. and Littlechild, R. 2006. An overview of the implementation and development of direct payments. In Leece, J. and Bornat, J. (eds), Developments in Direct Payments. The Policy Press, Bristol, UK, 1932.CrossRefGoogle Scholar
Glasby, J. and Littlechild, R. 2009. Direct Payments and Personal Budgets: Putting Personalisation into Practice. Policy Press, Bristol, UK.Google Scholar
Glendinning, C. 2006. Paying family caregivers: evaluating different models. In Glendinning, C. and Kemp, P. A. (eds), Cash and Care: Policy Challenges in the Welfare State. Policy Press, Bristol, UK, 127–40.Google Scholar
Glendinning, C. 2008. Increasing choice and control for older and disabled people: a critical review of new developments in England. Social Policy and Administration, 42, 5, 451–69.Google Scholar
Glendinning, C. and Kemp, P. A. (eds) 2006. Cash and Care: Policy Challenges in the Welfare State. Policy Press, Bristol, UK.Google Scholar
Glendinning, C., Challis, D., Fernandez, J., Jacobs, S., Jones, K., Knapp, M., Manthorpe, J., Moran, N., Netten, A., Stevens, M. and Wilberforce, M. 2008. Evaluation of the Individual Budgets Pilot Programme: Final Report. Social Policy Research Unit, University of York, York, UK.Google Scholar
Glendinning, C., Arksey, H., Jones, K., Moran, N., Netten, A., Rabiee, P. 2009. Individual Budgets Pilot Projects: Impact and Outcomes for Carers. Social Policy Research Unit, University of York, York, UK.Google Scholar
Goldberg, D. 1992. General Health Questionnaire. NFER Nelson, Windsor, UK.Google Scholar
Hasler, F. 2003. Clarifying the Evidence on Direct Payments into Practice. National Centre for Independent Living, London.Google Scholar
HM Government 2005. Opportunity Age. Meeting the Challenges of Ageing in the 21st Century. Department for Work and Pensions, London.Google Scholar
HM Government 2008. Carers at the Heart of 21st Century: Families and Communities. HM Government, London.Google Scholar
Jenson, J. and Jacobzone, S. 2000. Care Allowances for the Frail Elderly and Their Impact on Women Care-givers. DEELSA/ELSA/WD(2000)2, Organisation for Economic Co-operation and Development, Paris.Google Scholar
Leason, K. and Sale, A. U. 2004. Is help easily at hand? Community Care, 612 May, 28–31.Google Scholar
Leece, J. and Bornat, J. (eds) 2006. Developments in Direct Payments. Policy Press, Bristol, UK.Google Scholar
Leece, D. and Leece, J. 2006. Direct payments: creating a two-tiered system in social care? British Journal of Social Work, 36, 8, 1379–93.Google Scholar
Lord, J. and Hutchison, P. 2003. Individualized support and funding: building blocks for capacity building and inclusion. Disability and Society, 18, 1, 7186.Google Scholar
Lundsgaard, J. 2005. Consumer Direction and Choice in Long-term Care for Older Persons, Including Payments for Informal Care: How Can it Help Improve Care Outcomes, Employment and Fiscal Sustainability? OECD Health Working Papers No. 20, Organisation for Economic Co-operation and Development, Paris.Google Scholar
Moran, N., Arksey, H., Glendinning, C., Jones, K., Netten, A. and Rabiee, P. 2011. Personalisation and carers: whose rights? Whose benefits? British Journal of Social Work. doi:10.1093/bjsw/bcr075.Google Scholar
Moran, N., Glendinning, C., Stevens, M., Manthorpe, J., Jacobs, S., Wilberforce, M., Knapp, M., Challis, D., Fernandez, J.-L., Jones, K. and Netten, A. 2010. Joining up government by integrating funding streams? The experiences of the Individual Budget pilot projects for older and disabled people in England. International Journal of Public Administration, 34, 4, 232–43.Google Scholar
Morris, J. 2006. Independent living: the role of the disability movement in the development of government policy. In Glendinning, C. and Kemp, P. A. (eds), Cash and Care: Policy Challenges in the Welfare State. The Policy Press, Bristol, UK, 235–48.Google Scholar
Netten, A., Forder, J. and Shapiro, J. 2006. Measuring Personal Social Services Outputs for National Accounts: Services for Older People. Discussion Paper No. 2267/3, Personal Social Services Research Unit, University of Kent, Canterbury, UK.Google Scholar
Netten, A., Jones, K., Knapp, M., Fernandez, J.-L., Challis, D., Glendinning, C., Jacobs, S., Manthorpe, J., Moran, N., Stevens, M. and Wilberforce, M. 2011. Personalisation through Individual Budgets: does it work and for whom? British Journal of Social Work. doi:10.1093/bjsw/bcr159.Google Scholar
Palmore, E. and Luikart, C. 1972. Health and social factors related to life satisfaction. Journal of Health and Social Behaviour, 13, 1, 6880.Google Scholar
Poll, C., Duffy, S., Hatton, C., Sanderson, H. and Routledge, M. 2006. A Report on In Control's First Phase 2003–2005. In Control Publications, London.Google Scholar
Priestley, M., Jolly, D., Pearson, C., Riddell, S., Barnes, C. and Mercer, G. 2006. Direct Payments and disabled people in the UK: supply, demand and devolution. British Journal of Social Work, 37, 7, 1189–204.Google Scholar
Prime Minister's Strategy Unit 2005. Improving the Life Chances of Disabled People. Cabinet Office, London.Google Scholar
Ritchie, J. and Spencer, L. 1994. Qualitative data analysis for applied policy research. In Bryman, A. and Burgess, R. G. (eds), Analysing Qualitative Data. Routledge, London, 173–94.CrossRefGoogle Scholar
Rummery, K. 2009. A comparative discussion of the gendered implications of cash-for-care schemes: markets, independence and social citizenship in crisis? Social Policy and Administration, 43, 6, 634–48.Google Scholar
Spandler, H. and Vick, N. 2004. Direct Payments, Independent Living and Mental Health. Health and Social Care Advisory Service, London.Google Scholar
Spandler, H. and Vick, N. 2005. Enabling access to direct payments: an exploration of care coordinators’ decision-making practice. Journal of Mental Health, 14, 2, 145–55.Google Scholar
Stevens, M., Glendinning, C., Jacobs, S., Moran, N., Challis, D., Manthorpe, J., Fernandez, J.-L., Jones, K., Knapp, M., Netten, A. and Wilberforce, M. 2011. Assessing the role of increasing choice in English social care services. Journal of Social Policy, 40, 2, 257–74.CrossRefGoogle Scholar
Timonen, V., Convery, J. and Cahill, S. 2006. Care revolutions in the making? A comparison of cash-for-care programmes in four European countries. Ageing & Society, 26, 3, 455–74.Google Scholar
Ungerson, C. 2000. The commodification of care: current policies and future politics. In Hudson, B. (ed.), Gender and Citizenship in Transition. Routledge, New York, 173–99.Google Scholar
Ungerson, C. 2003. Commodified care work in European labour markets. European Societies, 5, 4, 377–96.Google Scholar
Ungerson, C. and Yeandle, S. 2007. Cash-for-care in Developed Welfare States. Palgrave Macmillan, Basingstoke, UK.Google Scholar