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Developing the social distress scale for head and neck cancer outpatients in Japan

Published online by Cambridge University Press:  04 May 2011

Minako Deno ,
Mie Tashiro ,
Mitsunori Miyashita ,
Takahiro Asakage ,
Koji Takahashi ,
Kenich Saito ,
Yasunobu Busujima ,
Yoshiyuki Mori ,
Hiroto Saito  and
Yuji Ichikawa
Minako Deno*
Affiliation:
Ando Laboratory, Advanced Research Centers, Keio University, Minato-Ku, Tokyo, Japan
Mie Tashiro
Affiliation:
Showa University School of Dentistry, Oota-ku, Tokyo, Japan
Mitsunori Miyashita
Affiliation:
Division of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Aoba-ku, Tokyo, Japan
Takahiro Asakage
Affiliation:
Department of Otolaryngology, Faculty of Medicine, University of Tokyo, Bunkyo-ku, Tokyo, Japan
Koji Takahashi
Affiliation:
Department of Oral Rehabilitation, Showa University School of Dentistry, Oota-ku, Tokyo, Japan
Kenich Saito
Affiliation:
Department of Dentistry and Oral Surgery, Kanto Medical Center NTT EC, Shinagawa-ku, Tokyo, Japan
Yasunobu Busujima
Affiliation:
Department of Dentistry and Oral Surgery, Tokyo Metropolitan Bokutoh Hospital, Sumida-ku, Tokyo, Japan
Yoshiyuki Mori
Affiliation:
Department of Oral-Maxillofacial Surgery, Dentistry and Orthodontics, University of Tokyo Hospital, Bunkyo-ku, Tokyo, Japan
Hiroto Saito
Affiliation:
Department of Dentistry and Oral Surgery, Tokyo Metropolitan Health and Medical Treatment Corporation Ebara Hospital, Oota-ku, Tokyo, Japan
Yuji Ichikawa
Affiliation:
Department of Oral Surgery, Tokyo Metropolitan Health and Medical Treatment Corporation Toshima Hospital, Itabashi-ku, Tokyo, Japan
*
Address correspondence and reprint requests to: Minako Deno, Ando Laboratory, Faculty of Letters, Keio University, 2-15-45 Mita, Minato-Ku, Tokyo, 108-8345Japan. E-mail: denominako@a5.keio.jp
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Abstract

Objective:

This study assessed the factor structure, internal consistency, and concurrent and discriminant validity of a scale used to measure social distress in Japanese head and neck cancer outpatients with facial disfigurement.

Method:

The sample included 225 Japanese outpatients with head and neck cancer, including 129 patients with facial disfigurement. Participants' level of social distress was assessed through our scale, the European Organization for Research and Treatment Cancer questionnaire (EORTC) QLQ-H&N35 and the Hospital Anxiety and Depression scale (HADS).

Results:

Factor analyses confirmed the structure of two subscales of the social distress scale. Social distress was significantly correlated with the social contact subscale of the EORTC QLQ-H&N35 and the HADS.

Significance of results:

Results demonstrated preliminary reliability and validity of the social distress scale. This scale may extend social adjustment research by revealing its determinants and effects for head and neck cancer with facial disfigurement in Japan.

Keywords

Head and neck cancerSocial distressSocial avoidanceFacial disfigurement
Type
Original Articles
Information
Palliative & Supportive Care , Volume 9 , Issue 2 , June 2011 , pp. 165 - 172
Copyright
Copyright © Cambridge University Press 2011

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References

REFERENCES

Bjordal, K., Ahlner-Elmqvist, M., Tollesson, E., et al. (1994). Development of a European Organization for Research and Treatment of Cancer (EORTC) questionnaire module to be used in quality of life assessments in head and neck cancer patients. EORTC Quality of Life Study Group. Acta Oncologica, 33, 879–885.CrossRefGoogle ScholarPubMed
Carr, T., Moss, T. & Harris, D. (2005). The DAS24: A short form of the Derriford Appearance Scale DAS59 to measure individual responses to living with problems of appearance. British Journal of Health Psychology, 10, 285–298.CrossRefGoogle Scholar
Chandu, A., Smith, A. & Rogers, S. (2006). Health-related quality of life in oral cancer: A review. Journal of Oral and Maxillofacial Surgery : Official Journal of the American Association of Oral and Maxillofacial Surgeons, 64, 495–502.Google Scholar
Clarke, A. (1999). Psychosocial aspects of facial disfigurement: Problems, management and the role of a lay-led organization. Psychology, Health & Medicine, 4, 127–142.CrossRefGoogle Scholar
De Boer, M.F., Pruyn, J.F.A., Vandenborne, B., et al. (1995). Rehabilitation outcomes of long-term survivors treated for head and neck cancer. Head and Neck, 17, 503–515.Google Scholar
Dropkin, M.J., Malgady, R.G., Scott, D.W., et al. (1983). Scaling of disfigurement and dysfunction in postoperative head and neck patients. Head and Neck Surgery, 6, 559–570.CrossRefGoogle ScholarPubMed
Gamba, A., Romano, M., Grosso, I.M., et al. (1992). Psychosocial adjustment of patients surgically treated for head and neck cancer. Head and Neck, 14, 218–223.Google Scholar
Hagedoorn, M. & Molleman, E. (2006). Facial disfigurement in patients with head and neck cancer: The role of social self-efficacy. Health Psychology, 25, 643–647.CrossRefGoogle ScholarPubMed
Hassan, S.J. & Weymuller, E.A. (1993). Assessment of quality-of-life in head and neck cancer patients. Head and Neck, 485–496.CrossRefGoogle ScholarPubMed
Hosaka, T., Awazu, H., Aoki, T., et al. (1999). Screening for adjustment disorders and major depression in otolaryngology patients using the Hospital Anxiety and Depression Scale. International Journal of Psychiatry in Clinical Practice, 3, 43–48.CrossRefGoogle ScholarPubMed
Kaneko, S. (2003). A study on nursing intervention for patients who acquired disabilities after tongue excision: An approach through analysis of stress processes [in Japanese]. Acta Scientiarvm Valetvdinis Universitatis Praefectvralis Ibarakiensis: ASVPI., 8, 9–18.Google Scholar
Katre, C., Johnson, I.A., Humphris, G.M., et al. (2008). Assessment of problems with appearance, following surgery for oral and oro-pharyngeal cancer using the University of Washington appearance domain and the Derriford appearance scale. Oral Oncology, 44, 927–934.CrossRefGoogle ScholarPubMed
Katz, M.R., Irish, J.C., Devins, G.M., et al. (2000). Reliability and validity of an observer-rated disfigurement scale for head and neck cancer patients. Head and Neck, 22, 132–141.3.0.CO;2-K>CrossRefGoogle ScholarPubMed
Katz, M.R., Irish, J.C., Devins, G.M., et al. (2003). Psychosocial adjustment in head and neck cancer: the impact of disfigurement, gender and social support. Head and Neck, 25, 103–112.CrossRefGoogle ScholarPubMed
Kitamura, T. (1993). Hospital anxiety and depression scale [in Japanese]. Seisinka Sindangak, 4, 371–372.Google Scholar
Koster, M. & Bergsma, J. (1990). Problems and coping behavior of facial cancer patients. Social Science & Medicine, 30, 569–578.CrossRefGoogle ScholarPubMed
Kugaya, A., Akechi, T., Okamura, H., et al. (1999). Correlates of depressed mood in ambulatory head and neck cancer patients. Psycho-oncology, 8, 494–499.Google Scholar
Kugaya, A., Akechi, T., Okuyama, T., et al. (1998). Screening for psychological distress in Japanese cancer patients. Japanese Journal of Clinical Oncology, 28, 333–338.CrossRefGoogle ScholarPubMed
Kugaya, A., Akechi, T., Okuyama, T., et al. (2000). Prevalence, predictive factors, and screening for psychologic distress in patients with newly diagnosed head and neck cancer. Cancer, 88, 2817–2823.3.0.CO;2-N>CrossRefGoogle ScholarPubMed
Millsopp, L., Brandom, L., Humphris, G., et al. (2006). Facial appearance after operations for oral and oropharyngeal cancer: A comparison of casenotes and patient-completed questionnaire. British Journal of Oral and Maxillofacial Surgery, 44, 358–363.Google Scholar
Ogama, N. (2005). A study of the multiple problems faced by patients with tongue cancer and their process of lifestyle changes [in Japanese]. Bulletin of Kobe City College of Nursing, 9, 23–33.Google Scholar
Otaki, T., Kabashima, T., Kasahara, H., et al. (1986). A case of tongue cancer who became non-cooperative with the therapy after the surgical operation: An attempt of consultation-liaison psychiatry [in Japanese]. Japanese Journal of Psychosomatic Medicine, 26, 263–268.Google Scholar
Partridge, J. (1998). Changing faces: Taking up Macgregor's challenge. Journal of Burn Care and Rehabilitation, 19, 174–180.Google Scholar
Rogers, S.N., Gwanne, S., Lowe, D., et al. (2002). The addition of mood and anxiety domains to the University of Washington quality of life scale. Head and Neck, 24, 521–529.CrossRefGoogle Scholar
Sato, M., Kaneko, Y., Kaneko, S., et al. (2008). Lives of oral cancer patients with postoperative facial deformities [in Japanese]. The Kitakanto Medical Journal, 58, 17–26.Google Scholar
Toth, G., Sakaguchi, T., Mikami, Y., et al. (2005). A pilot study of the translation, cultural adaptation and validation of the EORTC head and neck cancer quality of life questionnaire module (QLQ-H&N35) for use in Japan. Auris Nasus Larynx, 32, 175–183.CrossRefGoogle ScholarPubMed
Vickery, L.E., Latchford, G., Hewison, J., et al. (2003). The impact of head and neck cancer and facial disfigurement on the quality of life of patients and their partners. Head and Neck, 25, 289–296.Google Scholar
Zigmond, A.S. & Snaith, R.P. (1983). The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica, 67, 361–370.CrossRefGoogle ScholarPubMed