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Uncommon dementia and the carer's perspective

Published online by Cambridge University Press:  08 September 2005

D. LoGiudice
Affiliation:
Melbourne Extended Care and Rehabilitation Service, Parkville, Australia
A. Hassett
Affiliation:
University of Melbourne and Sunshine Hospital, St Albans, Australia

Abstract

There is much caregiving literature describing factors that affect carer burden, and interventions that may be useful for carers of those with common dementias such as Alzheimer's disease (AD). By contrast, relatively little information and few data are available on potentially diverse issues facing carers of those with uncommon dementias, such as frontotemporal dementia (FTD), Huntington's disease (HD) and human immunodeficiency virus (HIV) dementia. This paper highlights particular characteristics of caregiving for those with uncommon dementias, and the unique needs that may arise for this group of carers who often “fall between the net” of services and supports available. Further research into this area is required.

Type
Research Article
Copyright
© International Psychogeriatric Association 2005

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