Developmental Medicine & Child Neurology

Table of Contents - 2005 - Volume 47, Issue 04  


Annotation

Subjective quality of life in children with intellectual impairment – how can it be assessed?

Melanie White-Koning  a1 c1, Catherine Arnaud  a2, Sylvie Bourdet-Loubère  a1, Hélène Bazex  a1, Allan Colver  a3 and Hélène Grandjean  a4
a1 National Institute of Health and Medical Research (INSERM), U558, Toulouse, France.
a2 Université Paul Sabatier, France.
a3 University of Newcastle upon Tyne, Newcastle upon Tyne, UK.
a4 INSERM, U558, Toulouse, France on behalf of the SPARCLE Collaborative Group.

The relationships between quality of life (QoL), participation, and environment are being studied within a multicentre European study of 8- to 12-year-old children with cerebral palsy (CP; Study of PARticipation of Children with cerebral palsy Living in Europe [SPARCLE], www.ncl.ac.uk/sparcle/). The international group was determined that children with CP who also had intellectual impairment (IIm) should not be excluded from the study, but the group realized that there was little information available on how to assess subjective QoL in children with IIm. This annotation reviews and discusses the literature on conceptual and methodological issues in relation to such assessment.

(Accepted December 14 2004)


Correspondence:
c1 INSERM, Unité 558, Faculté de Médecine, 37 allées Jules Guesde, 31073 Toulouse Cedex, France. E-mail: koning@cict.fr

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